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Transforming Madness: New Lives for People Living with Mental Illness, by Jay Neugeboren
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In Imagining Robert, Jay Neugeboren told the sad, deeply personal, often harrowing story of one man and one family's struggle with chronic mental illness. Now, he presents an overview of the entire field: a clear-eyed, articulate, comprehensive survey of our mental health care system's shortcomings and of new, effective, proven approaches that make real differences in the lives of millions of Americans afflicted with severe mental illness. A book for general readers and professionals alike, Transforming Madness is at once a critique, a message of hope and recovery, and a call to action. Filled with dramatic stories, it shows us the many ways in which people who have suffered the long-term ravages of psychiatric disorders have reclaimed full and viable lives.
- Sales Rank: #665074 in Books
- Published on: 2001-05-07
- Original language: English
- Number of items: 1
- Dimensions: 8.97" h x .93" w x 5.98" l, 1.22 pounds
- Binding: Paperback
- 400 pages
From Publishers Weekly
A quiet revolution is taking place in the care and treatment of the mentally ill, observes Neugeboren in this invaluable state-of-the-art report. Within the last five to 10 years, antipsychotic medications have become much more effective and their side effects less debilitating. Just as important, he notes, is the emergence of recovery programs, peer support centers and community treatment facilities that make it possible for the severely mentally ill to go to college, hold down jobs, marry and raise childrenAeven without being fully cured. There is a downside, though: general hospitals, now the primary providers of inpatient psychiatric care in the U.S., are as dreadful as they were a quarter-century ago, the author opines. In his moving 1997 memoir, Imagining Robert, Neugeboren, who is also a novelist (The Stolen Jew) and teaches at UMassAAmherst, discussed his brother's three decades of breakdowns and hospitalizations. This deep personal involvement with psychiatric illness propels the present book, an open-ended odyssey in which the author astutely probes a profession deeply divided between psychotherapeutic and pharmacological approaches. While acknowledging the value of drugs, Neugeboren makes a strong case for psychotherapy in the treatment of schizophrenia, other psychoses and mood disorders. Though the narrative at times feels padded, the searing profiles of people who have recovered and built new lives, often after having been pronounced medically hopeless, along with Neugeboren's selective evaluations of treatment programs, will make his journey enlightening to patients, their families and caregivers, as well as to general readers. Author tour. Agent, Richard Parks.
Copyright 1999 Reed Business Information, Inc.
From Library Journal
"Drugs are not enough" might telegraph the message of this major survey of our mental health system, its virtues and sins, and its patients, therapists, and managers. Neugeboren, a novelist, guardian/biographer of his mentally ill brother (Imagining Robert, LJ 11/1/96), and teacher (Univ. of Massachusetts), brings out the possibilities for life afterAand withAserious mental illness. He tells the stories of many individuals who are living well despite terrible psychiatric histories, thanks to programs that include good psychotherapy and social support along with psychiatric medication. Unfortunately, many programs lack an essential human element, and the drive for pharmaceutical research to make psychosis medically curable just like other illnesses leaves psychotherapy, rehabilitation, and follow-up care in the shadows. Neugeboren provides a literate, lively guide, rich in history, biography, and economics as well as psychology and neurochemistry. This should be on the short list of books on mental health that can be called great. Recommended for all libraries.AE. James Lieberman, George Washington Univ. Sch. of Medicine, Washington, DC
Copyright 1999 Reed Business Information, Inc.
From Booklist
Neugeboren surveys the mental health care system, discussing what he sees as its faults and the possibilities for the future. Because his brother suffers from mental disease, it's no academic matter for the author. The problems Neugeboren found go beyond the social stigmas attached to mental illness. He argues, among other things, that many treatment programs incorrectly separate the mentally ill from society, to the detriment of patient, family, and community. Using the testimony of patients and mental health professionals, he concludes that drug treatment, though at times the best option, is frequently overused. But Neugeboren also discovered innovative, successful programs. One, for example, places increasing responsibility on the mentally ill for getting better, making them an active part of the process. The case histories and stories of his brother's struggle to get better create a compassionate overview of an issue the U.S. is just beginning to look at squarely. Brian McCombie
Most helpful customer reviews
0 of 0 people found the following review helpful.
Gives a good outline on the problems facing mental health care in ...
By Alexy
Gives a good outline on the problems facing mental health care in the US. Good starting point for anyone involved in these issues but maybe too much for the average reader to follow with interest
20 of 22 people found the following review helpful.
Profound message of hope
By Douglas Whynott (whynott@cheshire.net)
I was one of Jay Neugeboren's student in the graduate creative writing program at the University of Massachusetts, where for nearly 30 years he has helped develop many writers, such as Bret Lott, Susan Straight, Valerie Martin and others. For the greater part of his career Jay Neugeboren has been a novelist and short story writer whose work has appeared in hundreds of publications including the O'Henry Awards and Best American Short Stories. During the past decade Neugeboren has turned to writing nonfiction about mental illness, first with "Imagining Robert" and most recently with "Transforming Madness." His purpose in "Imaging Robert" was to focus on his brother, who for most of his life has tragically and defiantly struggled with schizophrenia and who has at times lived in the most horrible of conditions in locked wards. "Imaging Robert" is also a memoir, a family story in which Neugeboren tells not only of his struggle to take care of Robert, but also deal with the guilt of his own success in light of his brother's continual suffering. In "Transforming Madness" Neugeboren moves a step further and shows the reader something he or she may not have thought possible-how people who have been chronically mentally ill have found ways to manage their illness lead successful lives. The effect of reading this remarkable book is to gain understanding and sympathy for those afflicted with mental illness, and to also experience the joy of watching happiness come to some of the unlikeliest people. Neugeboren shows us that in addition to therapy, support groups, and medications, it is the presence of hope that brings people from affliction and despair into productive living. As a result, "Transforming Madness" is a profound message of hope, and an act of caring that comes by way of long practice.
11 of 12 people found the following review helpful.
Comprehensive Guide and Understanding Mental Health
By A Customer
The mental health system can be more confusing than mental illness. We have hundreds of thousand's of people in our mental health system. Most people have come in contact with someone who has been part of the mental health system. Yet, we don't understand mental health.
Jay has written a book about what is possible in mental health. Having a mental illness is not the end of the road. Mental illness is the beginning of a new life. We can understand and live with mental illness.
I am one of the people who Jay interviewed. I am honored to be part of this book. Jay spent time with people who are mentally ill and who are in our mental health system. Nobody has ever explained this system in such a clear way. Nobody has described the day to day bravery that those of us with mental illness have. Mental illness is very destructive and disorienting we can live with our psychiatric condtion. We do have mental health programs that work. We need to inform people of the possibilities of our mental health system. Thank you Jay for educating the public about the successes and possibilities of our quiet but profound revolution in mental health.
A system where people actually do get better rather than get worse
READ THIS BOOK
Moe Armstrong
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